Helping Huntington's Disease Families Find Resources
Support
HDSCN Support Groups are supervised by LCSW or MSW from caregiver agencies to ensure professional oversight.
Care
Help in Finding the best Care
HDSCN focuses on helping you find the appropriate clinic or facility for the care of your HD loved ones.
Network
Networking Resources
HDSCN referrals will help
you make
the best possible choices for your situation.
HD often affects the whole family, for generations.
Caregiver Support Groups
HDSCN's mission is to help HD families find the best possible support services, care professionals and community services for their HD loved ones. In some cases children are affected with Juvenile Huntington's disease. Our beloved JHD children require much more attention to support and care. HD Support & Care Network is here to help.
HD Support & Care Network is a free service provided to HD families in the US. We take pride in our mission is to help HD families find the best possible support and care resources, and community services for their HD loved ones.
Huntington’s disease (HD) is a autosomal dominant neurogenetic disease causing involuntary movements, emotional and behavioral disturbances, and
progressive
cognitive decline over ten to twenty years. Each child of an affected parent are at risk with a 50/50 chance of inheriting the same fatal affliction. HD usually strikes between the ages of 30 to 40, in an individual’s prime productive years, though children as young as a couple of months old, and adults in their eighties may also develop
symptoms
. Most individuals in the late stages of illness require enormous assistance; they lose the ability to walk, talk, and feed themselves, but are still consciously aware of themselves and their families.
Juvenile Huntington's disease (JHD) is more virulent and devastating with seizures and dystonia. Typically, children up to 20 years of age with a CAG of 60 or above are diagnosed with JHD.
Our mission at HD Support & Care Network
Thank you sponsors and partners!
